Improving body donation information to support informed consent

Guidance on how establishments can improve their body donation information.

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Anatomy establishments, such as medical schools and surgical skills centres, are often keen to promote their facilities and engage more widely in education or training. People donate their bodies in the hope that they can be used for the good of society, benefitting other people. In addition to the typically expected activities taking place in these centres, this concept of benefitting other people could include activities which seek to: raise awareness of health and wellbeing for health education purposes; improve anatomical or wider biological knowledge, or; improve patient or client safety.

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Activities

Designated Individuals have a statutory duty to ensure that the ‘persons to whom the licence applies are suitable persons to participate in the carrying-on of the licensed activity’, ensure suitable practices, and ensure that the conditions of the licence are complied with. Donated material may be used for the training and education of suitable people provided that valid consent is in place. In assessing a person’s suitability, factors such as recognised qualifications, professional registration and relevant experience should be considered. It is important that the information provided to potential donors makes it clear who are deemed to be suitable people, by setting out the expected range of people who will have access to the donated material. This will give potential donors the opportunity to ask further questions and, ensure that informed consent is in place. It will also give the opportunity to donors to decline a donation if they are not comfortable with the proposed use.

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Suitable practices and people

Establishments may wish to run or host courses. If establishments intend to permit course providers to use donated material, the information provided to potential donors should include details of any fees that are charged and how courses are approved. The information should include details about educational courses attended by people who are not health care staff or students. It should be made clear that potential donors can discuss any concerns that they have to ensure that informed consent is in place and that they understand how the material may be used.

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Courses

Establishments may charge for providing human tissue and other resources. Charges may take into account costs associated with staff time, transportation or the use of equipment. Where cost recovery or any other charging mechanism is in place, it is important that establishments are able to satisfy themselves that the information provided to potential donors is sufficient to ensure the donor understands that a fee may be paid. The HTA also recommends that establishments ensure transparency by providing easily accessible information about how and why they charge, and to whom they will supply donated material. This is important to ensure that the consent sought from donors is fully informed.

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Costs and charges

Establishments should regularly review their donor information to ensure that it is up to date and reflects their current activities and charges where relevant. They should also consider their likely future activities to ensure that the scope of consent given by the donor covers those activities. This may involve a review of the courses that donated material will be used for and identification of the types of professionals and other individuals that may be involved in the activities. Information does not have to be overly detailed or contain graphic descriptions but it should be easy to understand, and there should be opportunities for potential donors to ask for further information. In considering future activities, establishments are advised to identify potential liabilities or risks, and establish ways to mitigate them. Establishments are encouraged to consider ways of extending their document review to include members of the public or potential body donors. By engaging with their target audience, establishments can benefit from receiving feedback on the general level of understanding of the information they provide to donors. This may help to identify areas in which they need to be clearer with their explanations.

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Keeping donor information under review
Can a donation accepted under a previous version of body donor information be used for new activities?

Establishments may need to check the donor consent form and the information used to support consent to determine if it is reasonable to use their body for a new activity. Under no circumstances must establishments use a body for the new activity if there are factors in the consent which would appear to rule out the proposed activity.

How do coordinating centres, which manage body donations on behalf of several receiving establishments, fairly reflect all the activities of the establishments they work for?

We appreciate this may be more challenging than for individual establishments. However, the concept of ensuring informed consent, supported by clear information, still applies and the principles of transparency set out in the accompanying guidance should be considered. As a starting point, the following general questions should be considered when establishments are reviewing the information they provide.

  • What are all the anticipated activities?
  • Who are the people involved in doing them?
  • Does the scope of the consent currently given by a typical donor using this process cover:
    • the range of activities?
    • the people doing these?
    • the concept of charging (where relevant)?

If you have any questions relating to these matters, please send us an enquiry.

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